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    Knight News Challenge Winners: Health Care Meets Big Data

    by Desiree Everts
    January 14, 2014
    Principled Strategies' SafeUseNow, a 2014 Knight News Challenge winner, uses data to identify incidents of prescription drug abuse by tracking combinations of prescribers, patients and pharmacies that may be contributing to the problem.

    The Knight Foundation today announced the latest winners of its News Challenge grantees. This latest round focused on health data and included projects from youth counseling via text messaging to chemical analysis tools and connecting communities with local health services. Seven winners received a portion of the $2.2 million total in grants.

    You can check out the live-stream of the announcement here.

    “By addressing the vital area of health each winner highlights the transformative impact that data, when used correctly, can have on communities.” -Michael Maness, Knight Foundation

    Health data is a new focus for the contest, which seeks to support innovation in media.

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    “By addressing the vital area of health each winner highlights the transformative impact that data, when used correctly, can have on communities,” Michael Maness, Knight Foundation vice president of journalism and media innovation, said in a statement. “In this way, the projects tackle real-world problems while opening up opportunities for people to explore new ways to apply data — within the health sphere and beyond.”

    Here’s what we know about this round’s winners. You’ll be able to read more about some of them here on Idea Lab.

    cchp_twitterCamden Health Explorer
    Award: $450,000
    Organization: Camden Coalition of Healthcare Providers
    Project leads: Jeffrey Brenner, Erek Dyskant and Aaron Truchil
    Twitter: @CamdenHealth, @EDyskant, @ATruchil
    Video: http://kng.ht/JEtDD2

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    In Camden, New Jersey, as in many U.S. cities, 1 percent of patients generate 30 percent of health care costs. Many of these patients arrive in emergency rooms seeking care for easily treatable or preventable conditions; they often face a fragmented, uncoordinated and expensive health care system. The Camden Coalition of Healthcare Providers addresses this problem by sharing data between the city’s hospitals and providers to better target resources and proactively tackle patient health issues. The Camden Health Explorer is the next step in this effort. The open source tool, built in partnership with data firm BlueLabs, will aggregate anonymous individual health and medical claims data, then display and map the results by demography and geography. Camden Coalition staff will work with local stakeholders, including hospital administrators, providers and policymakers, to ensure the data make Camden’s health care system more efficient and ultimately make patients healthier. The dashboard will make the tool available to other communities.

    Jen Chiou

    Jen Chiou

    Crisis Text Line
    Award: $350,000
    Organization: DoSomething.org
    Project Leads: Jennifer Chiou and Nancy Lublin
    Twitter: @DoSomething, @jen_chiou, @NancyLublin
    Video: http://kng.ht/1gcrpFP

    Crisis Text Line provides youth with free counseling via text messaging. Over its 5 month beta phase, it has helped teens in crisis with more than 14,000 text conversations. Created by DoSomething.org, one of the largest organizations in the country for teens and social change, Crisis Text Line provides intervention and live referral services from trained counselors, reaching teens through a preferred means of communication: SMS. With challenge funding, Crisis Text Line will launch the service nationally and create a national, anonymous database about teens in crisis to inform further initiatives in this area.

    Homebrew Sensing Project
    Award: $350,000
    Organization: Public Laboratory
    Project Leads: Shannon Dosemagen, Jeffrey Warren, Mathew Lippincott
    Twitter: @PublicLab, @SDosemagen, @headfullofair
    Video: http://kng.ht/1lyngQi

    People are increasingly concerned about exposure to of hazardous chemicals — from formaldehyde in building materials to fumes from industrial sites — and their long- and short-term health impacts. To address this problem, the Public Laboratory wants to provide more low-cost chemical analysis tools, including simple devices that can be plugged into smartphones and laptops, so residents can measure the effects themselves instead of relying on costly labs. With its community of more than 3,500 active members, Public Lab raised $110,000 from more than 1,500 backers in 2012 with a Kickstarter campaign to use DIY spectrometry tools to identify petroleum in sediments in coastal Louisiana and monitor emissions from oil refineries, among other projects. Knight funding will allow the lab’s Homebrew Sensing Project to expand, improve its hardware and software, and connect with citizens to collect data that empowers communities.

    Anselm Bradford

    Anselm Bradford

    Ohana API
    Award: $210,000
    Organization: Code for America
    Project Leads: Sophia Parafina, Moncef Belyamani, Anselm Bradford
    Twitter: @codeforamerica, @locatively, @monfresh, @anselmbradford
    Video: http://kng.ht/1eDboHY

    Launched in beta in San Mateo County, Calif., by a team of Code for America fellows, this open source tool connects citizens with community resources through one centralized database. Ohana helps people locate social services, displays them on a map and makes the results easily printable. This database unites information on health, human and social services that are often kept in separate silos, such as paying for food, finding affordable health care or connecting with a social worker. Exposing the data through a Web API, the tool allows users to quickly access targeted community information through applications such as search engines, smartphones, or SMS.

    Open Humans Network
    Award: $500,000
    Organization: PersonalGenomes.org
    Project Leads: Jason Bobe and Madeleine Price Ball
    Twitter: @PGorg, @jasonbobe, @madprime
    Video: http://kng.ht/1hrCEht

    Patients today have greater access to their own medical records, but they are limited in their ability to share that information, which hinders the potential for advancing medical research. To address these problems, the Open Humans Network will create an online portal to connect people willing to publicly share data about themselves with researchers. The portal will include three components: a personal page that will allow participants to set up their data profile; a public data explorer enabling people to use data compiled from participant profiles; and a set of design guidelines for researchers looking to use a collaborative data sharing model.

    Tina Tosenberg

    Tina Tosenberg

    Positive Deviance Journalism
    Award: $180,000
    Organization: Solutions Journalism Network
    Project Lead: Tina Rosenberg
    Twitter: @soljourno, @tirosenberg
    Video: http://kng.ht/1hrCZ3E

    The Solutions Journalism Network seeks to broaden the role of journalism: it should not just uncover society’s ills, but also report on responses to those problems. Founded by authors of the New York Times “Fixes” column, the Network works with newsrooms looking to include regular coverage of how communities, individuals and institutions address challenges and what society can learn from such efforts. Using this framework, the Solutions Journalism Network will collaborate with partner newsrooms and the Institute for Health Metrics and Evaluation to scan data sets for “positive deviance” in the health sector— examples of promising health results that could lead to important stories. For instance, a journalist working in a city that has been unable to help people increase their levels of physical activity could identify cities that have succeeded in doing this and report on how the gains were achieved. Solutions Journalism Network will coach newsrooms to identify, vet, develop and write these stories.

    Patrick Burns

    Patrick Burns

    SafeUseNow
    Award: $208,000
    Organization: Principled Strategies
    Project Leads: Patrick Burns and Paul Dubose
    Twitter: @SafeUseNow, @PJBatSUN
    Video: http://kng.ht/1991yzg

    Since the 1990s, prescription drug abuse has significantly increased in the United States. However, a lack of actionable information about prescription drug abuse risk, despite the increase of state monitoring programs, makes it difficult to combat the problem. SafeUseNow aims to reduce abuse by making prescribing safer and more effective. The tool uses data to identify combinations of prescribers, patients and pharmacies who may be contributing to the problem. This information helps pharmacies, insurance companies and other health care stakeholders educate prescribers to more effectively and safely treat patients. It also allows them to monitor prescribing patterns for changes in trends and behavior. A successful pilot with one health plan provider achieved a significant reduction in key risk factors. With Knight Foundation funding, the team will scale the project for use by Medicaid plans in California and aims to spread around the country.

    Desiree Everts is the associate editor for Idea Lab and PBS MediaShift. She’s dabbled in digital media for the past decade including stints at CNET News and Wired magazine.

    Tagged: health data healthcare knight foundation news challenge winners

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